Kayla Hansen has just learned how quickly life can change. When she woke up with a rash, she assumed it was nothing serious. She ignored it for a while, but when it didn’t go away, she sought help. That doctor revealed a truth that broke her world to pieces.
Hansen opened up about her story on social media. She wants other people to understand the struggle she has endured with a rare skin condition – in the hopes of lightening the burden for someone else.
Listen to her story below and share with a friend today!
When Hansen first shared her story, she included two pictures (included above).
“Picture on right is right before I got sick and picture on left is what my skin looks like now. My name is Kayla Hansen and a year and a half ago my life was changed forever. For those that know me you know that I love to work and have a ton of passion for my career of managing restaurants.
“Dec. 27th 2015 I went in to work just like every other day not knowing my life as I knew it was soon to be over. I unfortunately got my hand slammed in between two doors and initially just thought my hand was broken. After 2 months of the swelling not going down, and my arm feeling like it was on fire I was given the diagnosis that I had complex regional pain syndrome also known as CRPS.
“It is extremely rare and is literally rated the most painful thing In the world. More painful than childbirth, amputation, or any cancer there is. It is an autoimmune disease that effects every single part of your body including organs. Your body can no longer control temperature and it literally feels like you are being burned alive 24/7. Along with the burning there are a million other symptoms, your brain tells every part of your body that it is hurting. It affects your bones, muscles, every nerve in your body, body tissue and all organs.
“Some people are lucky and the disease stays contained In just one limb. However I am very unlucky and mine has spread from my head to my toes in just over a year. I have seen over 50 doctors and they all say mine is the worst case they’ve ever seen. My condition is so bad that I’m literally being burned alive.
Both of my arms from my shoulders down to my hands are covered in serious burns that start from the inside out. The burns are so serious that I have been hospitalized numerous times because if I were to get an infection I’d easily lose my arms. I am starting this go fund me for numerous reasons…. the first being the costs of all my treatments.
In a little over a year I’ve had over 40 surgeries and procedures. I am already so far in debt but still fighting and refuse to give up. I leave april 8th to travel to arkansas to see a specialty doctor in my disease.
There are only 4 doctors in the world that do what she does. I have to stay there for up to 14 weeks.. Between room and board and treatments it will costs thousands a week. There is no cure for this disease but I am hoping that I can at least get some relief. I went from living on my own being a hardworking 28 year old, to now I have to live with my parents and I’m completely dependent on them. I can’t drive, I can’t work, I can’t even take a bath or wash my hair by myself.
“The other reason I am starting this account is I DESPERATELY WANT TO SPREAD THE WORD OF THIS AWFUL DISEASE. Although it is very rare we need to spread the word and make it so the whole world is informed of this condition.. It can happen to anyone at anytime. It is brought on by a trauma or a surgery. It is known as the suicide disease because up to 40% of people with this disease kill themselves because the pain is so incredibly unbearable most cannot live with it. I understand everyone has their own issues and money problems but even if you cannot donate PLEASE PLEASE SHARE THIS ACCOUNT SO THE WORLD CAN BE INFORMED OF THIS TERRIBLE DISEASE AND MAYBE ONE DAY FIND A CURE.”
Visit her page on GoFundMe and help share her story.
Please PASS IT ALONG to a friend on Facebook now!
